Wednesday, February 27, 2013

The Worst Running Injury Ever

Cecal Volvulus is a new word in my vocabulary that will always make me cringe in pain.  It's not a common injury, thought it's occurrence has been higher in runners than non-runners and I've seen records going back to The New England Journal of Medicine in 1985.  There aren't any warning signs and nothing to check for to see if you've got it.  What it is, is a twisting of the cecal valve which joins the large and small intestine and prohibits the passage of any more material into the large intestine.  If it goes on long enough gangrene can set in and a rupture of the small intestine can occur, polluting the abdominal cavity.  It is, as you can imagine, excruciatingly painful.

The expedition of pain started for me the evening of Monday, February 18th.  Around 5 P.M. I was running home from work and had just a touch of indigestion.  Nothing unusual, just a little stomach upset.  Amy and I had a normal dinner and a drink and nothing seemed too out of the ordinary, though the indigestion was still there.  We were in bed around 10 and I slept soundly until 11, when I woke up with noticeably more discomfort.  At this point it felt like food poisoning, and I kept expecting the usual 'passing' of waste, but nothing was happening.  I was up and down from bed several times and was even browsing on my phone for symptoms of appendicitis, since what I had now seemed similar to what Amy suffered through with that several years ago.  By 2 A.M. I'd had enough and woke Amy.

She drove me down to what was an empty emergency room at Fairview Riverside.  It was an uncomfortable ride, but I was still in control of myself and managed to walk in and start getting checked out.  I was here for three hours with an IV in my arm and some mild pain medications that seemed to be doing the trick.  Over this time I had a CT scan and and ultrasound, neither of which showed my appendix nor the torsion in my intestine.  This coupled with the location of my pain, in the area just below my navel, and the fact that I had had bowel movements during the previous day led the doctors to feel that it was probably just a bad stomach virus and I was sent home with a bottle of hydrocodone, a pretty solid pain pill.  I was actually a little relived that it was just a bug, and I could get back to things in a few days.  Some home we went, me to the couch and Amy to bed, so she could get some rest and I could toss and turn.

I didn't get a lot of rest, and around 10 A.M. Wednesday morning, I was nauseous and having massive stomach cramps.  I soon started having massive heaves, throwing up everything I'd eaten in the last half a day, and hard enough that I had a bloody nose.  I was curled up on the floor moaning and crying out for Amy and eventually worked my way over to the other side of the house where she could hear me.  There was absolutely no question we'd be going back to the ER.  So, around 11AM we were back at Fairview Riverside.

I was soon changed and back on a table, this time on my left side, since it was the only position I was remotely comfortable, and with an IV back in giving me .4MG/hour of some kind of narcotic (I sure remember those numbers).  Around here I really lost track of time as the pain increased.  I'm not sure how long I was in the ER, but I had one long episode of throwing up while talking to the doctor.  While they double checked the CT scan and still didn't see anything they were concerned enough to want me to stay for a while.  So an ambulance transport was arranged for me to be moved over to University of Minnesota Medical Center on the East bank for observation.  I had it together enough to get off the bed and onto the gurney myself since it was only a few feet.  Amy was left to drive herself over.  I can only imagine what she was going through at this point.

As I was in my new room at UMMC I didn't look at anything other than the wall.  Occasionally someone would come in and want to palpate my stomach, often enough that I was getting pissed off.  Yes the pain was still there, no it hadn't moved, why don't you talk to the last person that did this.  One doctor even put me through that several times.  Part of the problem was that each time I rolled from my side to my back, then to my side again, it took many minutes for the pain to squelch enough that it was tolerable.  The plan, as I understood it, was to take blood from me again in the morning (since they already had for my second ER visit) and if there were still problems have a surgical consult somewhere around 6AM.

The only problem for me is the pain meds were no longer doing anything, and I was beginning to moan and groan non-stop, occasionally yelling, except for the times where I'd pass out for a few minutes.  They have a 0 to 10 pain scale you are supposed to rate your pain on and I repeatedly was saying 9, 9, 9.  I remember quite vividly regularly clawing at the air just trying to grasp at something and sometimes staring in terror into Amy's eyes and begging her to make it stop.  This went on for a long time, but I can't really say the exact time since it was basically a black pit for me.  Sometime during the evening nurse Andrew came on duty and started going to bat for me.  He gave me a some extra checks to see if it was simply bad constipation (if only) and got my pain meds bumped up to 1mg/hr.  Sadly even at that level it wasn't doing anything.

He eventually got the powers that be to get a surgical consult in immediately since the medication and other obvious checks weren't doing anything, and my pain kept increasing.  Clearly, he said, there is something really wrong with this guy.  Amy had been telling them that I handle pain really well, and if I'm screaming then it has to be really bad.

So it was, around 2AM, the anesthesiologist came up to my room to help get me prepped to move and I was soon being wheeled down to the OR.  I didn't really care what they did, I just wanted to be put under.  Amy and I waited outside the OR while she held my hand and I wailed on, the only relief being that I knew I'd soon be unconscious.  The plan was that they would do an exploratory laproscopic surgery (insert a camera and have a look around) then deal with whatever it was when they came to it.  I asked Amy to call my parents when I went in.  The surgeon, Dr. Harmon, came over and introduced himself putting a gentle hand on me, and I was soon wheeled off into the OR.

They had me roll onto my back, then transferred me from the cot to the operating table and strapped my arms down and put a mask on my face.  The last thing I said to them was that I had a really low resting pulse and I'd probably set off their alarms (as I had been all day).  Then I was out.

Some time later I groggily came to in a recovery room, with a nurse attending to me.  I pretty much had no idea what had happened, but she chatted to me and let me know where I was and that my parents and Amy were waiting for me.  After she made sure I was coming around OK, I was wheeled up to a recovery room, which is where I first saw Amy and my parents from inside my fog.  A few nurses moved me to my bed and got me hooked up to all kinds of devices, and we all sat and stared at each-other.  And like it had started, Amy holding my hand.

I later learned that I had cecal volvulus, which they found pretty quickly with the laproscopy.  Unfortunately the only way to deal with this was to open me up with a 10 inch incision starting about 1 inch above my navel and going downwards.  Then removing about 5cm of small intestine, the cecal valve, and the vertical section of my large intestine, for about a foot total.  That includes my appendix as well.  Full recovery, 6-8 weeks.  Right now, my stomach is tender and sore, but nowhere near the pain I had been feeling.

www.stanford.edu
What it looked like before.  The purple blob is the choked off small intestine.  Courtesy of www.stanford.edu.

eyewitnessanimations.medicalillustration.com
The after, with the cecal valve and ascending lower intestine removed. Courtesy of eyewitnessanimations.medicalillustration.com

20 comments:

  1. Yeowch! Glad your doctors were able to figure it out. Too bad they weren't quicker about it!

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    1. I would have loved it if they caught it right away, on the other hand, at least nothing ruptured or died. All in all they did a pretty good job.

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  2. Yeoch!!! take it slow and we will see you out on the trails in no time.

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    1. I'm hoping, Jeff. I plan on getting down to Zumbro to help out a bit. I'll see you there at the latest.

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  3. You might want to talk to them about the after, it looks like you also managed to get implants. Either way your looking better than ever!

    Sorry to hear about this Adam but glad to hear they got it all figured out and that you'll make a full recovery!!

    GR

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    1. Thanks Gary!

      The implants are a benefit of my insurance :) It makes the recovery easier.

      I'm looking forward to trying my new, lighter self out on some nice single-track.

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  4. Thanks for the details. Any yippee for the nurse who advocated for his patient and got you the meds and attention you needed.

    Recover well.

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    1. Yeah, Andrew came and visited me after the surgery, too which was really nice.

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  5. Some guys will do anything to cut their running weight - even have some of their bowel removed! ;) When they move you from 4 to 10 on the morphine, it's serious pain; I've been there and wouldn't wish it on anyone. Glad to see you're feeling well enough to post this and hope you're back to normal quickly. Now I have to look up Dr. Harmon; I might know him.

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    1. Thanks Steve! I'll be visiting the good Dr this afternoon.

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  6. Checked. I know who he is, but I don't know him.

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  7. Can't believe this happened! Just found out about it and happy to hear things got figured out. If your recovery is anything how you run at night, I look forward to running with you soon.

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  8. Thanks Jordan. Another two weeks or so and I'll be able to lace up the running shoes.

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  9. Wow... I just went through the same thing! I'm an avid trail runner and mountain biker, and this came out of no where...
    Wondering how you are doing by now. I am just a week out of surgery. I know it will be awhile before I'm anything like I was, but curious how your recovery went.

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  10. Ugh, let me start by saying I'm really sorry you had to go through that. If it was like mine, you just found a whole new definition of pain that I'm sure you wish you didn't have.

    Rest assured, though, that if you are a good patient and do exactly what your Dr. says, you will bounce back quickly. I'm sure you are walking around the house now, and in another week you'll be outside for short walks. I did everything I was told and no more, because I didn't want to risk any more damage and I was cleared to start very gentle short runs at 4-weeks, though still no lifting. Then at 6-weeks I was cleared to start lifting and running harder.

    Since my surgery in late February, I ran Miwok (about 10 weeks from surgery), then Bighorn in June, a marathon PR in July, and Wasatch in September. I haven't had any ill effects from it, and other than still being a few pounds down from my presurgery weight, everything is back to normal. I'd be willing to bet, that you'll be 100% by the time spring rolls around and you are ready to start hitting the trails hard again.

    On the bright side, your legs are probably getting a much needed break, and if there's a good time of year to be laid up, the start of winter is probably it. Good luck with your recovery, and may you not have any setbacks.

    -Adam

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  11. Hi Adam, you have no idea how much I appreciate your words of encouragement. You are right, I'm starting to get out for short walks, and trying hard to not use my abs much to avoid an incisional hernia. The races you have done since your surgery, and the fact that you've had no further problems, has uplifted my mood more than 100 well meaning friends who have never experienced this before. There's something about sharing this with someone who has been there. Thank you! -Susan

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  12. I also had a Cecal Volvulus after I started running a lot. Worst pain of my life. My story is very similar and I made multiple trips to the ER and no one could figure out what was wrong. It took 5 days from start of pain to emergency laparoscopic surgery which was basically to try and figure out what was going on. I'm not happy it happened to you but it makes me feel better to hear of someone else who has gone through it.

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  13. I cannot imagine 5 days of going through that. The pain is bad enough, but not knowing what is going on just makes it more scary. I'm glad they finally figured it out for you!

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  14. Oh my gosh, I'm so happy to have found this thread! So, I had approximately 7 years of mystery ER visits (averaging every 1.5 years) before my Big One (which sounds very similar to yours) where I'd start writhing in pain, throwing up,and reporting that I felt like my bowel just stopped....and then several hours later, I'd pass gas, start having bowel sounds, the swelling would go down and I'd be fine again. Multiple CT scans,some showing ascites and swollen small bowel, but no reason for either. But, I just had the Big One. Where it got worse and worse and worse....and now I too sport the 10 inch scar. So, how have you all dared in the years following? I just had my follow-up and felt truly sobered at the news that the abdominal surgery will likely cause adhesions, which could, in turn, result in new blockages. I'm hoping it's just a possibility without much probability but have any of you all dealt with subsequent issues from adhesions?

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    1. Especially with years of continued running. I'm an avid runner/triathlete can't imagine life without running.

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